Early memories
Childhood illnesses found decades ago are still around today, but through medical interventions children are now living longer. Gene therapy, surgery and other treatments are now available that weren’t possible in the past.
Jackie explains: “We have children living with very rare conditions and so the ratio of nurses to children is now much higher because of their complex medical needs.”
One of her fondest early memories was taking a large group of siblings back to Toc H one summer.
“For many siblings it was the first time that they had experienced something just for themselves. We had a brilliant weekend away on the beach, and around that time we were starting to develop a programme of sibling care.”
Jackie became part of the Season’s sibling support group, which gives the brothers and sisters of the sick children, opportunities to meet up with other young people and take part in trips and activities.
“It is a pleasure to be around some truly inspirational children and their families – I get so much from them.”
A familiar face at Francis House from the late 90s was the late Kirsty Howard who received respite at the hospice from aged three and a half until her death in 2015.
“Kirsty was an amazing lady and we had lots of laughs over the years. But we also had many difficult conversations with her and her two sisters about what the future might hold. I remember doing lots of night shifts and how important it was for them to have the time to talk through their feelings.
“I watched Kirsty grow up from being a little child, as I’ve watched lots of children grow up, and then to be with them and their families at the end of their lives.
“Being with parents in the Rainbow Room and able to share some truly special memories is always a privilege.”