Cerysa Doherty joined the Francis House hospice team in 2016, in April this year she was appointed Clinical Lead at the teenage and young adult unit Francis Lodge. She tells us about the care services since the outbreak of the Coronavirus and how support is being provided to vulnerable children and their families.
I am responsible for overseeing the care of the young people with life-limiting conditions when they are staying at Francis Lodge for respite. But with COVID-19, families are shielding, and regular respite arrangements have been replaced by emergency respite for families who have experienced problems and unable to care for their young people at home.
At present the hospice is providing symptom control, end of life care, emergency respite and telephone support.
Many families have stopped carers coming into their homes, so the hospice team are in constant contact, ringing them on a regular basis to see how they are. This support is a real lifeline and a comfort to them.
Having a child that is so vulnerable adds to their anxiety. Families are having to provide 24-hour care, day in day out with no end in sight. Without any support they are getting desperate and are struggling.
We are offering as much support as we can, and we have procedures in place to keep them safe as they leave their little shielding group.